A Support Network for You
A family who has a child with a disability will likely want to be intentional about forming a network of people that they themselves can count on for support. With the support of this network, the family can then better help their young person develop a personal support network of their own. Usually there will be some overlap in the membership of the two groups.
This group will probably consist of a few of your close friends and relatives–people whom you trust and whom you know to be wise and supportive. They may already have an understanding of the dynamics of your family, your needs, and the gifts and needs of your child, or they are open to developing this awareness.
When forming a network:
Invite these people together to meet one another and so that you can share your situation and what you are hoping for from the group.
Talk about what you need and hope for in a network. This may vary widely—a listening ear, someone who would step in and cook dinner or provide transportation in an emergency, a group you can brainstorm with when you face major decisions.
Some of these people may become members of a network or circle of support for your family member. Others will be there primarily for you.
Work out with those present how you will connect regularly so they can stay informed and active in their support.
Make sure that when the group gets together the times are enjoyable—serve refreshments, allow time to socialize.
Be creative! There is no one way of forming a support network and it does not necessarily have to include formal meetings.
